Lady Darls
Enlightened..!
- Joined
- Jun 24, 2008
- Messages
- 475
Jane McDonald goes out with the drummer from Liquid Gold .... "Dance yourself Dizzy"
Jane McDonald goes out with the drummer from Liquid Gold .... "Dance yourself Dizzy"
Sorry I was working yesterday until very late so didnt get online.
Thank You all for your kind wishes and thoughts towards Chloe, she has two more booked sessions of Cryotherapy each four weeks after the previous session. Her dermatologist is relatively hopeful that she will have little or no scarring after her course of treatment although her chin area looks particularly bad and is quite blistered afterwards.
She has been advised to use total sunblock on her face ( her and her boyfriend are off to Spain in an hours time), due to the damage caused, and that this is to be lifelong.
MUQ having lupus does not mean that you have sensitive skin , it means that your skin is photosensitive,which means sensitive to light, which is a totally different thing.
I dialyse at least 4 patients that have developed renal failure as a result of their Lupus, and are now on renal replacement therapy as a life preserving treatment.
ime afraid that haveing lupus does mean i have sensative skin . i should know ime the one whos had it for the last 20 years and i still have it , when i was dying with lupus i had professors and every one that knew about lupus to come up with a cure to treat me to stop me from dying of lupus in the end ,
when i finally pulled through this illness , they found out i had lupus and told me what it was all about and the proffesors who treated me told me that people with systemic lupus like me will have very sensative skins ,
there are other kinds of forms of lupus not just systemic which i have , other forms of lupus can just effect people looseing their hair and other people can have problems with their kidneys and other body parts insides , and the other form of lupus is that it just effects the skin and nothing else ,
well with systemic lupus , mine can effect any body part in side and out, hair the lot mainly, it gives you fits migrains and all kinds of things, there is a whole list of things it effects ,
including one of the main things is the skin ,
so i should know about after 20 years , ive lived with it.
but lupus is a very serious illness ,
i know exactly what happened to me very well indeed , and it be something will never forget ever in my life,
if people want to hear the truth , and not from some one here usuming what happened ,
i will say just one thing that i was treated very badly by my own practioners , it dont just take multi organ falier to die with lupus you can also die whe your doctors dont do anything to help you either too like mine didnt . i feel still very bitter about it after 20 years .
ime sorry to hear you have an immune too