When I booked mine got two appointments at the same, next one in May, same for my frontline workers, theirs is in April. The Asta Zeneca has given me a very painful forearm but finally, nearly 7 days later, it's improving.
That’s my strong belief too! I had the worst chest infection I have ever had (with the exception of whooping cough a few years back) in December 2019. I had to go to the GP and was sent for a chest XRay. It was just dreadful. Then in January I got shingles! What a great couple of months they were, .I lost my taste and smell in the beginning of December 2019 - weeks before we heard about (officially anyway) Covid, and definitely weeks before loss of taste and smell was designated as a symptom. So its my strong belief that Covid was widespread in this country long before we were officially told about it.
I have just read your post alter, sorry I didn’t get back to you earlier. Like you, I don’t use the EMS around the house. Prednisalone was offered to me for flare ups. In the beginning it really dealt with the inflammation but less so with time. It gave me so much energy and it was impossible to sleep. There was also the issue of weight gain. The antibiotics are essential for me because MS can cause constant UTIs. Each infection caused a new MS flare up. In my case all the pros and cons were weighted up and alternating between low dose antibiotics was the only way forward. I know it’s not the best thing but it has helped me a great deal.
Knowing you have a folding chair in the boot is very reassuring. Sometimes I just say, that’s enough I want the wheel chair now! I am now look for every way that will make things easier. As I have said the lift is our next project and my grandchildren can’t wait to have a new toy!
When I win the lottery I'll buy you the off-roader! PromiseThanks for replying.
I'm so ****** angry my surgery can NOT get my records right! My neuro has written to them about prescribing diazepam short-term for back spasms that are so painfulI can't move for days. My MS nurse has written to ask that I'm prescribed antibiotics for frequent UTIs.
Having said that, I've no idea if the letters are being sent or received. I live in a county that doesn't have a hospital with a neuro (or many other specialities) so we all get shunted to the next county hospital (which is actually half the distance away from our 'proper' hospital). My neuro actually told us he was seeing me 'out of the goodness of his heart' as our county is apparently slow to pay the other county. This has made me even more reluctant to have the treatment I probably should be having.
On top of that I have TM rather than MS which one locum in my surgery said she'd never heard of. My neuro is expecting it to become PPMS at some stage, though. It all goes over my head. All I know is my body reacts in the opposite way to drugs that's normal - that's with most drugs. I'm also allergic to a lot of things so the Covid jab might be fun for me.
I'm not a fan of antibiotics but they're the only thing between my UTIs and a kidney infection - as my history shows. And that's without the risk of relapse. I also had an allergic reaction that frightened the crap out of me the last twice I had them so have to take anti-histamines alongside them. I signed the antibiotic charter as I was bought up by a mum who nearly lost her life to an infection pre-antibiotic days and it seems we're heading that way again. Luckily, I saw a female doctor in a women's clinic about 5 years ago and was taught to double-void as I can't empty my bladder properly (I use catheters when it really gets stuck, increasing the risk of UTI). It takes me ****** ages to pee but I've gone from having 13-14 infections a year to maybe 2.
Sorry. That turned into an almighty rany. It must be PMT time ThoughI have been looking at wheelchairs since reading your post. If I win the lottery I'm buying the Genny off-roader and the Genie standing chairs (I'm an ex-biker and would love those but am oddly scared of a scooter!).
When I win the lottery I'll buy you the off-roader! Promise
Contact your MP with all your concerns & inform the practice manager of your complaint. If that doesn't get things sorted contact the NHS England Customer Contact Centre on 0300 311 2233 or email [email protected]. My wonderful brother in law died because of the negligence of an inadequate doctor & my sister & I don't take any cr*p. You've worked for the health service so must have seen more than your fair share of useless medics & their minions. Funnily enough I've never heard anyone have an issue with a vet. Having a UTI is my idea of Hell, I take cranberry extract tablets daily & have an emergency supply of uva ursi.Thanks for replying.
I'm so ****** angry my surgery can NOT get my records right! My neuro has written to them about prescribing diazepam short-term for back spasms that are so painfulI can't move for days. My MS nurse has written to ask that I'm prescribed antibiotics for frequent UTIs.
Having said that, I've no idea if the letters are being sent or received. I live in a county that doesn't have a hospital with a neuro (or many other specialities) so we all get shunted to the next county hospital (which is actually half the distance away from our 'proper' hospital). My neuro actually told us he was seeing me 'out of the goodness of his heart' as our county is apparently slow to pay the other county. This has made me even more reluctant to have the treatment I probably should be having.
On top of that I have TM rather than MS which one locum in my surgery said she'd never heard of. My neuro is expecting it to become PPMS at some stage, though. It all goes over my head. All I know is my body reacts in the opposite way to drugs that's normal - that's with most drugs. I'm also allergic to a lot of things so the Covid jab might be fun for me.
I'm not a fan of antibiotics but they're the only thing between my UTIs and a kidney infection - as my history shows. And that's without the risk of relapse. I also had an allergic reaction that frightened the crap out of me the last twice I had them so have to take anti-histamines alongside them. I signed the antibiotic charter as I was bought up by a mum who nearly lost her life to an infection pre-antibiotic days and it seems we're heading that way again. Luckily, I saw a female doctor in a women's clinic about 5 years ago and was taught to double-void as I can't empty my bladder properly (I use catheters when it really gets stuck, increasing the risk of UTI). It takes me ****** ages to pee but I've gone from having 13-14 infections a year to maybe 2.
Sorry. That turned into an almighty rany. It must be PMT time ThoughI have been looking at wheelchairs since reading your post. If I win the lottery I'm buying the Genny off-roader and the Genie standing chairs (I'm an ex-biker and would love those but am oddly scared of a scooter!).
As long as any difference doesn't harm you.I am at OH and forgot one of my pills, so I am looking on it as an experiment to see if missing it for a few days makes any diiference
I don’t know what medication you’re on but, if it’s prescribed, I would’t think that it was advisable to stop taking them for a few days without checking with your doctor.I am at OH and forgot one of my pills, so I am looking on it as an experiment to see if missing it for a few days makes any diiference
Contact your MP with all your concerns & inform the practice manager of your complaint. If that doesn't get things sorted contact the NHS England Customer Contact Centre on 0300 311 2233 or email [email protected]. My wonderful brother in law died because of the negligence of an inadequate doctor & my sister & I don't take any cr*p. You've worked for the health service so must have seen more than your fair share of useless medics & their minions. Funnily enough I've never heard anyone have an issue with a vet. Having a UTI is my idea of Hell, I take cranberry extract tablets daily & have an emergency supply of uva ursi.
alter, I am so sorry to hear that things are not good. Do the hospital send you a copy of all letters sent to your GP? Luckily I do receive all hospital letters and I refer to these whenever I need contact with my GP. Also, I never make phone calls. I email the MS team or the GP’s surgery. When there is a written record I feel that they take greater care.
My wheelchair is very simple and requires me being pushed. As I’ve said it’s for those I can’t do this anymore moments. My scooter gives me the freedom to get out of the house on a sunny day. There are lots of things to consider but there are ways to make things easier. I have resisted making these decisions for years but having made them it’s fine. I walk when I can for as long as I can but it’s good to have alternatives because my balance is not too good and there are fatigue issues.
I get frustrated getting my medication sorted and it’s suddenly become my job to inform the GP when I am due blood tests. I am not looking for an admin job!
I hope you soon feel better. I haven’t felt too wonderful for a few days but today things are better. Take care and thinking of you.
I am at OH and forgot one of my pills, so I am looking on it as an experiment to see if missing it for a few days makes any diiference
I'm disgusted that you weren't called weeks ago & trust it'll get arranged asap. My sister dealt with PALS during the last couple of years of his life but after he died she said that she didn't have the physical or mental strength to carry on fighting; she'd spent two months sharing a side room with him because the staff were so incompetent & this was in a 'Centre of Excellence'. He was my hero, the most honourable person & an all round lovely man.A quick update after all those replies I've bombed the thread with...
Mr AE has had his jab appointment for next week as he's my unpaid carer. He rang earlier but they have nothing for me yet as I'm not on the list. Exactly the same as the normal flu jab.
He's ringing the manager tomorrow. That'll be fun. If he's not careful he'll be known as the 'difficult' carer of the non-existent 'difficult' patient